Emily and David Gold currently raise their four children (ranging in age from one to seven years old) in south Minneapolis. Shortly after birth, their five-year-old daughter Lizzie was diagnosed with Pallister-Killian Syndrome; an extremely rare genetic disorder with an estimated 2,000 cases currently in the United States. There is currently no treatment or cure for the life-limiting disease and those affected typically lose their life within the first decade.
Despite the many challenges that come with raising a child living with Pallister-Killian Syndrome, the Golds continue to give back to their community and neighbors. The family is actively involved in their church and Emily regularly shares her story with others in similar situations at local children’s health care facilities.